People with cancer and their families need assistance coping with the emotional and practical aspects of their disease. This list is by no means a comprehensive listing of all organizations that offer these services.
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Blood & Marrow Transplant Information Network
888-597-7674
http://www.bmtinfonet.org
Publishes a newsletter and books on BMT’s and Stem cell Transplants. Also has links to patients and survivors and maintains a directory of centers and will help with insurance problems.
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National Bone Marrow Transplant Link
800-LINK-BMT (800-546-5268)
http://comnet.org/nbmtlink
Operates a 24-hour, toll-free number and provides peer support to bone marrow transplant (BMT) patients and their families. It serves as an information center for prospective BMT patients as well as a resource for health professionals.
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National Marrow Donor Program®(NMDP)
800-MARROW-2 (800-627-7692)
http://www.marrow.org
Funded by the Federal Government to improve the effectiveness of the search for bone marrow donors. It keeps a registry of potential bone marrow donors and provides free information on bone marrow transplantation.
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American Brain Tumor Association
800-886-2282
http://www.abta.org
Offers free publications, educational programs, support group lists, physician list, pen pal program, and social service consultations by telephone.
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National Brain Tumor Foundation (NBTF)
800-934-CURE (800-934-2873)
http://www.braintumor.org
Provides patients and their families with information on how to cope with their brain tumors. Spanish-language help available.
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The Brain Tumor Society
800-770 8287
http://www.tbts.org
Provides supportive services, educational resources, news, events, and clinical trial information for patients, families, and healthcare providers.
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Breastcancer.org
http://www.breastcancer.org
A nonprofit website dedicated to providing the most reliable and complete information available.
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FORCE: Facing Our Risk of Cancer Empowered
954-255-8732
http://www.facingourrisk.org
Provides support, information, and resources for women at high risk for breast and ovarian cancer.
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Inflammatory Breast Cancer Research Foundation
877-786-7422
http://www.ibcresearch.org
Provides education, background, active participation in research, and links to clinical trial information.
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Living Beyond Breast Cancer
610-645-4567
http://www.lbbc.org
Provides educational materials, a calendar of events, a quarterly newsletter, a Young Survivors Network, and a toll-free helpline at 800-753-5222.
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Living With It
http://www.livingwithit.org
Designed as a support program for women with breast cancer and provides education, diet and exercise tips, personal stories, financial advice, and more.
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Men Against Breast Cancer
866-547-6222
http://www.menagainstbreastcancer.org
Targets and mobilizes men to be active participants in the fight to eradicate breast cancer and to provide support to men whose families are impacted by breast cancer.
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Mothers Supporting Daughters With Breast Cancer (MSDBC)
410-778-1982
http://www.mothersdaughters.org
Provides one-on-one support by mother volunteers. Distributes a mother’s handbook and daughter’s companion brochure.
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National Alliance of Breast Cancer Organizations (NABCO)
888-80-NABCO (888-806-2226)
http://www.nabco.org
NABCO provides information about breast cancer and acts as an advocate for the legislative concerns of breast cancer patients and survivors.
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National Breast Cancer Coalition
800-622-2838
http://www.stopbreastcancer.org
Grassroots organization dedicated to ending breast cancer through action and advocacy.
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Sharsheret
866-474-2774
http://www.sharsheret.org
Connects young Jewish women recently diagnosed with breast cancer with volunteers.
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Sisters Network, Inc.
866-781-1808
http://www.sistersnetworkinc.org
Seeks to increase local and national attention to the impact that breast cancer has in the African-American community. All chapters are run by breast cancer survivors and receive volunteer assistance.
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Susan G. Komen Breast Cancer Foundation Organization
http://www.komen.org
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SusanLoveMD.com
http://www.susanlovemd.com
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The Susan G. Komen Breast Cancer Foundation
800-I’M AWARE (800-462-9273)
http://www.breastcancerinfo.com/www.komen.org
A toll-free breast cancer helpline (1-800-I’M AWARE®) is answered by trained volunteers whose lives have been personally touched by breast cancer. Breast health and breast cancer materials are available.
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YMCA of the USA
202-467-0801
http://www.ywca.org
Program targets medically underserved women in need of early detection, education, breast and cervical cancer screenings and support services.
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Y-ME National Breast Cancer Organization, Inc.
800-221-2141 (English) 800-986-9505 (Spanish)
http://www.y-me.org
Y-ME serves women with breast cancer and their families through their national hotline (available 24 hours a day), open-door groups, early detection workshops, and support programs. Spanish-language help available.
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Young Survival Coalition
http://www.youngsurvival.org
The only international network of breast cancer survivors and supporters dedicated to the issues of women under 40 who are diagnosed with breast cancer.
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Candlelighters Childhood Cancer Foundation (CCCF)
800-366-CCCF (800-366-2223)
http://www.candlelighters.org
A nonprofit organization that provides information, peer support, and advocacy. A financial aid list has organizations to which eligible families may apply for assistance.
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Children’s Brain Tumor Foundation (CBTF)
866-228-4673
http://www.cbtf.org
Comprehensive site offering educational information, tips for hospital stays and going home, school issues, summer camps, and more.
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Kids Cancer Network
http://www.kidscancernetwork.org
FUNLETTER magazine, resource center and support network.
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National Childhood Cancer Foundation (NCCF)
800-458-6223
http://www.nccf.org
Supports research conducted by a network of institutions on the cancers of infants, children, and young adults.
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The Ulman Cancer Fund for Young Adults
888-393-FUND
http://www.ulmanfund.org
Provides free support programs, education and resources to benefit young adults, their families and friends who are affected by cancer.
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Colon Cancer Alliance
877-422-2030
http://www.ccalliance.org
Offers patient support, a resource center, news, research, advocacy, and events.
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Colon Connections
http://rattler.cameron.edu/colon
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Colorectal Cancer Network
301-879-1500
http://www.colorectal-cancer.net
A national advocacy group that raises public awareness about colorectal cancer and provides support services to colorectal cancer patients. Services include support groups, e-mail and Internet information, and a "One on One" service that connects newly diagnosed individuals with long-term survivors.
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United Ostomy Association, Inc.
800-826-0826 (6:30am - 4:30pm, PST)
http://www.uoa.org
Helps ostomy patients through mutual aid and emotional support. It provides information to patients and the public and sends volunteers to visit with new ostomy patients.
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About Herbs, Botanicals & Other Products
http://www.mskcc.org/mskcc/html/11570.cfm
Website led by an oncology-trained pharmacist that provides information about herbs and other products, including a clinical summary for each agent and details about adverse side effects, interactions, and potential benefits or problems.
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Center for Mind-Body Medicine
202-966-7338
http://www.cmbm.org
Combines modern science with ancient healing. Addresses the mental, emotional, social, physical, and spiritual sides of health and illness.
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National Center for Complementary and Alternative Medicine (NCCAM)
888-644-6226
http://www.nccam.nih.gov
Provides the latest news, research, events, and clinical trials in complementary medicine.
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American Cancer Society (ACS)
800-ACS-2345 (800-227-2345)
http://www.cancer.org
A voluntary organization that offers a variety of services to patients and their families. The ACS also supports research, provides printed materials, and conducts educational programs. Spanish language help available.
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American Institute for Cancer Research (AICR)
800-843-8114
http://www.aicr.org
Provides information about cancer prevention, particularly through diet and nutrition. They offer a toll-free nutrition hotline, pen pal support network, and funding of research grants. Spanish language publications available.
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American Society of Clinical Oncology (ASCO)
703-299-0150
http://www.asco.org
Contains more than 40,000 pages of information, including: cancer resources on the Internet, finding an oncologist, and up-to-date information about cancer policy issues.
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Anderson Network
800-345-6324
http://www.mdanderson.org/andersonnetwork
Along with providing educational forums and a quarterly newsletter, the Anderson Network offers a patient-matching program and support for caregivers.
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Asian American Health
http://www3.baylor.edu/~Charles_Kemp/asian_health.html
Provides understanding of Asian healthcare beliefs and practices, including web links to Asian health.
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Association of Cancer Online Resources
http://www.acor.org
Provides resources for cancer patients wanting to find others with similar cancers. Also has information about most kinds of cancer.
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Bloch Cancer Hotline
800-433-0464
http://www.blochcancer.org
Matches newly diagnosed cancer patients with trained, home-based volunteers who have been treated for the same type of cancer.
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Cancer Care, Inc.
800-813-HOPE (800-813-4673)
http://www.cancercare.org
A national nonprofit agency that offers free support, information, financial assistance, and practical help to people with cancer and their loved ones. Services are available in person, over the phone, and through the agency’s website.
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Cancer Control PLANET (Plan, Link, Act, Network with Evidence-based Tools)
http://cancercontrolplanet.cancer.gov
Developed as a joint effort between the National Cancer Institute and the American Cancer Society, among others, this site offers new tools for cancer control planning, implementation, and evaluation.
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Cancer Hope Network
877-HOPENET (877-467-3638)
http://www.cancerhopenetwork.org
The Cancer Hope Network provides individual support to cancer patients and their families by matching them with trained volunteers who have undergone and recovered from a similar cancer experience.
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Cancer Information and Counseling Line (CICL)
800-525-3777
http://www.amc.org
Professional counselors provide up-to-date medical information, emotional support through short-term counseling, and resource referrals to callers nationwide (8:30am - 5:00pm MST).
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Cancer Legal Resource Center
213-736-1455
http://www.wlcdr.org
Provides information on cancer-related legal issues for cancer survivors, their families, and others impacted by the disease.
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Cancer News on the Net
http://www.cancernews.com
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Cancer Research Institute
800-99-CANCER
http://www.cancerresearch.org
Supports leading-edge research aimed at developing immunological methods for the treatment, control and prevention of cancer.
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Cancer Survivor's Gathering Place
http://www.geocities.com/cancer_survivors
This website focuses on cancer survivors, providing an active bulletin board, chat rooms, links, and inspirational material.
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Cancer Treatment Centers of America
http://www.cancercenter.com
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Cancer On Line
http://www.canceronline.com
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Cancer411.org
877-226-2741
http://www.cancer411.org
Provides database on clinical trials that lists all ongoing cancer trials. Also offers news articles and other patient resources.
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CancerBACUP
http://www.cancerbacup.org.uk
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CancerSource
http://www.cancersource.com
Focuses on education, news, support, and includes detailed information on complementary and integrative therapies.
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Cancervive
800-486-2873
http://www.cancervive.org
Helps cancer survivors overcome the challenges of "life after cancer." In addition to support groups, they provide educational materials, insurance information and assistance, and advocacy.
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Carcinoid Cancer Foundation, Inc.
888-722-3132
http://www.carcinoid.org
Provides education, support groups, transcripts of lectures, and nutrition resources.
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Coping With Cancer Magazine
615-790-2400
http://www.copingmag.com
Magazine for people whose lives have been touched by cancer. Provides knowledge, hope, and inspiration from cancer survivors and healthcare professionals.
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Dave Dravecky’s Outreach of Hope
719-481-3528
http://www.OutreachOfHope.org
Offers comfort, encouragement and hope through the love of Jesus Christ to those suffering from cancer or amputation.
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Department of Health and Human Services
http://www.os.dhhs.gov
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Doctor's Guide to the Internet
http://www.docguide.com
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Exceptional Cancer Patients
814-337-8192
http://www.ecap-online.org
Provides emotional support and education for people living with cancer and other life-threatening illnesses.
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Fertile Hope
888-994-4673
http://www.fertilehope.org
A nonprofit organization dedicated to helping cancer patients with fertility issues.
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FindCancerExperts
http://www.findcancerexperts.com
A referral source for those who want a second opinion on a biopsy diagnosis of cancer.
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Food and Drug Administration
http://www.fda.gov
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Gilda’s Club, Inc.
917-305-1200
http://www.gildasclub.org
Provides social and emotional support to cancer patients, their families, and friends. Lectures, workshops, networking groups, special events, and a children’s program are available. Open in 14 cities.
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Guide to Internet Resources for Cancer
http://www.ncl.ac.uk/~nchwww/guides/clinks1.html
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Healthfinder
http://www.healthfinder.gov
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HealthyWorld Online
http://www.health.net
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InfoNet
http://infonet.welch.jhu.edu/advocacy.html
Provides an extensive list of toll-free numbers for more than 100 disease-related organizations.
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Intelihealth-Johns Hopkins Health Information
http://www.intelihealth.com
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International Association of Laryngectomees (IAL)
209-472-0516
An Association of over 230 laryngectomee clubs. Clubs provide pre and post-operation visits to laryngeal cancer patients and continuing support and education for laryngectomees and families.
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International Cancer Alliance (ICA)
800-ICARE-61 (800-422-7361)
http://www.icare.org
Provides a free Cancer Therapy Review, which includes information on a specific type of cancer (description and staging, treatment, diagnostic tests and clinical trials). Cancer Breakthroughs report is sent quarterly.
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Joint Commission on Accreditation Health Care Organization
http://www.jcaho.org
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Kids Konnected
800-899-2866
http://www.kidskonnected.org
Offers a variety of support services free to children, ages 3-18, who have a parent with cancer or who have lost a parent to cancer.
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Locks of Love
http://www.locksoflove.org
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Mary-Helen Mautner Project for Lesbians with Cancer (MHMPLC)
202-332-5536
http://www.mautnerproject.org
Provides transportation to and from treatment, legal assistance, support groups, bereavement counseling, education, and a smoking cessation program.
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Medicinenet.com Smart Medicine
http://www.medicinenet.com
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Medscape
http://www.medscape.com
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National Cancer Institute
800-4-CANCER (800-422-6237)
http://www.cancer.gov
An excellent and comprehensive site for people wanting to know more about cancer, including cancer prevention, definitions, clinical trial information, recipes, links to cancer centers, and a whole lot more.
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National Coalition for Cancer Survivorship (NCCS)
877-NCCS-YES (877-622-7937)
http://www.cansearch.org
NCCS is a network of groups and individuals that offer support to cancer survivors and their loved ones. It provides information and resources on cancer support, advocacy, and quality-of-life issues. A section of the NCCS website and a limited selection of publications are available in Spanish.
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National Lymphadema Network, Inc.
510-208-3200
http://www.lymphnet.org
Publishes a quarterly newsletter, provides referrals, and offers educational materials.
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Oncolink-University of Pennsylvania Cancer Center
http://www.oncolink.com
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OncologyChannel
http://www.oncologychannel.com
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People Living With Cancer
703-797-1914
http://www.plwc.org
Links all ASCO information and materials in addition to giving other communication access to people with all kinds of cancer.
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Planet Cancer
http://www.planetcancer.org
Website for young adults with cancer. A place to share insights, explore fears, or laugh with others.
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PubMed
http://www.ncbi.nlm.nih.gov/PubMed
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R. A. Bloch Cancer Foundation, Inc.
800-433-0464
http://www.blochcancer.org
The foundation matches newly diagnosed cancer patients with trained,home-based volunteers who have been treated for the same type of cancer. Informational materials, and a list of institutions that offer second opinions also available.
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Steve Dunn's Cancer Guide
http://www.cancerguide.com
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The Chemotherapy Foundation
212-213-9292
Supports Laboratory and clinical research for the control, cure and prevention of cancer through innovative medical therapies Conducts professional symposia to enable oncologists to incorporate advances into the care of patients distributes free literature.
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The Oley Foundation
800-776-OLEY
http://ww.oley.org
Provides free information and psychosocial support to patients fed by tubes or IV at home who cannot be sustained by normal eating because part of their gastrointestinal tract is damaged or removed.
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The Wellness Community
888-793-WELL (888-793-9355)
http://www.wellness-community.org
Provides free psychological and emotional support to cancer patients and their families. They offer support groups on stress reduction and cancer education workshops, nutrition guidance, exercise sessions, and social events.
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US Dept of Health and Human Services
http://www.hrsa.gov
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Vital Options and "The Group Room" Cancer Radio Talk Show
800-GRP-ROOM (800-477-7666)
http://www.vitaloptions.org
Sponsors a weekly syndicated call-in cancer radio talk show called "The Group Room." Listeners can participate in the show during its broadcast every Sunday from 4 p.m.- 6 p.m., EST. A live web simulcast available on the website.
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WebMd
http://www.webmd.com
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American College of Obstetricians and Gynecologists (ACOG)
http://www.acog.org
Provides detailed resources on cancers of the ovary, uterus, vulva, and cervix.
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Conversations: The International Ovarian Cancer Connection
806-355-2565
http://www.ovarian-news.org
Offers a free monthly newsletter providing hope, support and information about treatment options and coping tips. Survivor-to-fighter matching services available.
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Gillett Women’s Cancer Connection
http://www.gillettecancerconnect.org
Provides resources on breast and gynecologic cancers.
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Gynecological Cancer Foundation (GCF)
800-444-4441
http://www.wcn.org/gcf
Designed to increase public awareness of ways to prevent, detect and treat gynecological cancers and support innovative research.
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National Cervical Cancer Coalition
http://www.nccc-online.org
Focuses on giving support to women and their family members on issues related to cervical cancer.
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National Ovarian Cancer Coalition (NOCC)
888-OVARIAN (888-682-7426)
http://www.ovarian.org
NOCC raises awareness about ovarian cancer and promotes education about the disease. They also offer support groups, a database of gynecologic oncologists searchable by state, and educational materials.
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Ovarian Cancer National Alliance (OCNA)
202-331-1332
http://www.ovariancancer.org
Works to increase public and professional understanding of ovarian cancer and to advocate for research. The Alliance distributes materials and sponsors an annual advocacy conference for survivors and families.
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SHARE: Self-help for Women with Breast or Ovarian Cancer
866-891-2392
http://www.sharecancersupport.org
Provides support groups, educational forums, wellness programs, events, newsletter, and toll-free hotline. All services provided are free.
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The Ovarian Cancer Research Fund
800-873-9569
http://www.ocrf.org
Dedicated to advancing research by underwriting investigations to find techniques for detection and to aid in the development of new therapies. Also has videos and resource materials.
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Alliance for Lung Cancer Advocacy, Support, and Education (ALCASE)
800-298-2436
http://www.alcase.org
ALCASE offers programs designed to help improve the quality of life of people with lung cancer and their families. Programs include education about the disease, psychosocial support, and advocacy about issues that concern lung cancer survivors.
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Alliance for Lung Cancer
http://www.alcase.org
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American Lung Association
800-LUNG-USA
http://www.lungusa.org
Dedicated to preventing lung disease and promoting lung health.
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It’s Time to Focus on Lung Cancer
877-646-5864
http://www.lungcancer.org
Offers education, resources, clinical trial information, support groups, teleconferences, quarterly e-newsletter, personal stories, and news updates.
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Mesothelioma Web
http://www.mesotheliomaweb.org
Dedicated to consolidating mesothelioma information, contacts and important links all in one place.
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International Myeloma Foundation (IMF)
800-452-CURE (800-452-2873)
http://www.myeloma.org
Supports education, treatment, and research for multiple myeloma. They provide a toll-free hotline, seminars, and educational materials for patients and their families.
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Lymphoma Research Foundation (LRF)
800-500-9976
http://www.lymphoma.org
LRFA funds research and provides educational information on lymphoma. They offer a helpline for general information on lymphoma, as well as referrals to other resources, oncologists, clinical trials, and support groups. A buddy program is available to match newly diagnosed patients with other lymphoma patients who have coped with the disease.
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The Leukemia and Lymphoma Society
800-955-4572
http://www.leukemia-lymphoma.org
The goal of the society is to find cures for leukemia, lymphoma, Hodgkin’s disease, and multiple myeloma and to improve the quality of life of patients and their families. The society provides patient financial aid for specified treatment expenses and transportation, family support groups, First Connection (a professionally supervised peer support program), referrals, and school re-entry materials.
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The Multiple Myeloma Research Foundation (MMRF)
203-972-1250
http://www.multiplemyeloma.org
Supports research grants and professional and patient symposia on multiple myeloma and related blood cancers. MMRF publishes a quarterly newsletter, and provides referrals and information packets free of charge to patients and family members.
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Lance Armstrong Foundation
512-236-8820
http://www.laf.org
Enhances the quality of life for those living with, through, and beyond cancer.
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National Asian Women’s Health Organization (NAWHO)
415-989-9747
http://www.nawho.org
NAWHO is working to improve the health status of Asian women and families through research, education, leadership, and public policy programs. Resources for Asian women in English, Cantonese, Laotian, Vietnamese, and Korean.
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National Coalition for Cancer Survivorship
877-622-7937
http://www.canceradvocacy.org
Offers support to cancer survivors and their loved ones. Provides information and resources on cancer support, advocacy, and quality-of-life issues.
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Patient Advocate Foundation (PAF)
800-532-5274
http://www.patientadvocate.org
The PAF provides education, legal counseling, and referrals to cancer patients and survivors concerning managed care, insurance, financial issues, job discrimination, and debt crisis matters.
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American Foundation for Urologic Disease (AFUD)
800-242-2383
http://www.afud.org
Provides information on urologic disease and dysfunctions, including prostate cancer treatment options, bladder health, and sexual function. They also offer prostate cancer support groups.
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CaP CURE (association for the Cure of Cancer of the Prostate)
http://www.capcure.org
Provides funding for research projects to improved methods of diagnosing and treating prostate cancer. Also offers resources.
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National Prostate Cancer Coalition
202-463-9455
http://www.zerocancer.org
Advocacy organization seeking to increase prostate cancer awareness, enhance outreach and advocate for research funds and better detection strategies.
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Patient Advocates for Advanced Cancer Treatment
616-453-1477
http://www.paactusa.org
An Association for both patients and physicians for diagnostic and therapeutic treatments of prostate cancer.
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Phoenix5
http://www.phoenix5.org
Offers education, resources, information on treatment side effects, sexuality and intimacy, and tips for companions.
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Prostate Pointers
http://rattler.cameron.edu/prostate
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The Prostate Net
888-4-776-7638
http://www.prostate-online.com
The Prostate Net provides information on treatment options, research, news, support, and advocacy.
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Us Too International, Inc
http://www.ustoo.org
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US®TOO! International, Inc.
800-80-US TOO (800-808-7866)
http://www.ustoo.org
A prostate cancer support group organization. Goals of US TOO! are to educate men newly diagnosed with prostate cancer, offer support groups, and provide the latest information about treatment for this disease.
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AirLifeLine
877-247-5433
http://www.airlifeline.org
Volunteer pilot organization provides travel for those with financial need who must travel for medical treatment.
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Angel Flight
877-621-7177
http://www.angelflight.org
Network of 4,500 pilots who provide transportation.
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Corporate Angel Network, Inc.
866-328-1313
http://www.corpangelnetwork.org
CAN finds free air transportation (on corporate planes) for cancer patients who need medical treatment. Patients must be ambulatory.
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National Association of Hospital Hospitality Houses
800-542-9730
http://www.nahhh.org
Provides accommodations for families and patients receiving medical treatment away from home. Rates typically range from $5-$15 per day (sometimes free).
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National Patient Travel Helpline
800-296-1217
Locates the best available travel options for patients. Help available 24 hours.
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Ronald McDonald House
630-623-7048
http://www.rmhc.org
Offers a refuge from the hospital, a "home-away-from-home".
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Believe In Tomorrow National Children’s Foundation
800-933-5470
http://www.beleiveintomorrow.org
Service children under 17 only.
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Fairygodmother Foundation
773-388-1160
http://www.fairygodmothr.org
Grants wishes to adults (18 and over) in their last year of life.
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Famous Fone Friends
310-204-5683
Provides phone calls from famous celebrities and athletes. For children only.
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Give Kids The World
800-FOR-KIDS
http://www.gktw.org
Grants wishes for children only
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Make-A-Wish Foundation of America
800-722-WISH
http://www.wish.org
Grants wished for children only
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Starlight Children’s Foundation
800-274-7827
http://www.starlight.org
Grants wished for children and there families
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The Dream Factory, INC.
502-637-8700
http://www.dreamfactoryinc.com
Grants wishes for children under 18 only.
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Walt Disney World Resort
407-828-3453
Grants wishes to adults and children.
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