People with cancer and their families need assistance coping with the emotional and practical aspects of their disease. This list is by no means a comprehensive listing of all organizations that offer these services.
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Blood & Marrow Transplant Information Network
888-597-7674
http://www.bmtinfonet.org
Publishes a newsletter and books on BMT’s and Stem cell Transplants. Also has links to patients and survivors and maintains a directory of centers and will help with insurance problems.
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National Bone Marrow Transplant Link
800-LINK-BMT (800-546-5268)
http://comnet.org/nbmtlink
Operates a 24-hour, toll-free number and provides peer support to bone marrow transplant (BMT) patients and their families. It serves as an information center for prospective BMT patients as well as a resource for health professionals.
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National Marrow Donor Program®(NMDP)
800-MARROW-2 (800-627-7692)
http://www.marrow.org
Funded by the Federal Government to improve the effectiveness of the search for bone marrow donors. It keeps a registry of potential bone marrow donors and provides free information on bone marrow transplantation.
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American Brain Tumor Association
800-886-2282
http://www.abta.org
Offers free publications, educational programs, support group lists, physician list, pen pal program, and social service consultations by telephone.
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National Brain Tumor Foundation (NBTF)
800-934-CURE (800-934-2873)
http://www.braintumor.org
Provides patients and their families with information on how to cope with their brain tumors. Spanish-language help available.
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The Brain Tumor Society
800-770 8287
http://www.tbts.org
Provides supportive services, educational resources, news, events, and clinical trial information for patients, families, and healthcare providers.
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Breastcancer.org
http://www.breastcancer.org
A nonprofit website dedicated to providing the most reliable and complete information available.
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FORCE: Facing Our Risk of Cancer Empowered
954-255-8732
http://www.facingourrisk.org
Provides support, information, and resources for women at high risk for breast and ovarian cancer.
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Inflammatory Breast Cancer Research Foundation
877-786-7422
http://www.ibcresearch.org
Provides education, background, active participation in research, and links to clinical trial information.
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Living Beyond Breast Cancer
610-645-4567
http://www.lbbc.org
Provides educational materials, a calendar of events, a quarterly newsletter, a Young Survivors Network, and a toll-free helpline at 800-753-5222.
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Living With It
http://www.livingwithit.org
Designed as a support program for women with breast cancer and provides education, diet and exercise tips, personal stories, financial advice, and more.
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Men Against Breast Cancer
866-547-6222
http://www.menagainstbreastcancer.org
Targets and mobilizes men to be active participants in the fight to eradicate breast cancer and to provide support to men whose families are impacted by breast cancer.
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Mothers Supporting Daughters With Breast Cancer (MSDBC)
410-778-1982
http://www.mothersdaughters.org
Provides one-on-one support by mother volunteers. Distributes a mother’s handbook and daughter’s companion brochure.
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National Alliance of Breast Cancer Organizations (NABCO)
888-80-NABCO (888-806-2226)
http://www.nabco.org
NABCO provides information about breast cancer and acts as an advocate for the legislative concerns of breast cancer patients and survivors.
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National Breast Cancer Coalition
800-622-2838
http://www.stopbreastcancer.org
Grassroots organization dedicated to ending breast cancer through action and advocacy.
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Sharsheret
866-474-2774
http://www.sharsheret.org
Connects young Jewish women recently diagnosed with breast cancer with volunteers.
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Sisters Network, Inc.
866-781-1808
http://www.sistersnetworkinc.org
Seeks to increase local and national attention to the impact that breast cancer has in the African-American community. All chapters are run by breast cancer survivors and receive volunteer assistance.
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Susan G. Komen Breast Cancer Foundation Organization
http://www.komen.org
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SusanLoveMD.com
http://www.susanlovemd.com
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The Susan G. Komen Breast Cancer Foundation
800-I’M AWARE (800-462-9273)
http://www.breastcancerinfo.com/www.komen.org
A toll-free breast cancer helpline (1-800-I’M AWARE®) is answered by trained volunteers whose lives have been personally touched by breast cancer. Breast health and breast cancer materials are available.
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YMCA of the USA
202-467-0801
http://www.ywca.org
Program targets medically underserved women in need of early detection, education, breast and cervical cancer screenings and support services.
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Y-ME National Breast Cancer Organization, Inc.
800-221-2141 (English) 800-986-9505 (Spanish)
http://www.y-me.org
Y-ME serves women with breast cancer and their families through their national hotline (available 24 hours a day), open-door groups, early detection workshops, and support programs. Spanish-language help available.
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Young Survival Coalition
http://www.youngsurvival.org
The only international network of breast cancer survivors and supporters dedicated to the issues of women under 40 who are diagnosed with breast cancer.
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Candlelighters Childhood Cancer Foundation (CCCF)
800-366-CCCF (800-366-2223)
http://www.candlelighters.org
A nonprofit organization that provides information, peer support, and advocacy. A financial aid list has organizations to which eligible families may apply for assistance.
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Children’s Brain Tumor Foundation (CBTF)
866-228-4673
http://www.cbtf.org
Comprehensive site offering educational information, tips for hospital stays and going home, school issues, summer camps, and more.
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Kids Cancer Network
http://www.kidscancernetwork.org
FUNLETTER magazine, resource center and support network.
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National Childhood Cancer Foundation (NCCF)
800-458-6223
http://www.nccf.org
Supports research conducted by a network of institutions on the cancers of infants, children, and young adults.
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The Ulman Cancer Fund for Young Adults
888-393-FUND
http://www.ulmanfund.org
Provides free support programs, education and resources to benefit young adults, their families and friends who are affected by cancer.
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Colon Cancer Alliance
877-422-2030
http://www.ccalliance.org
Offers patient support, a resource center, news, research, advocacy, and events.
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Colon Connections
http://rattler.cameron.edu/colon
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Colorectal Cancer Network
301-879-1500
http://www.colorectal-cancer.net
A national advocacy group that raises public awareness about colorectal cancer and provides support services to colorectal cancer patients. Services include support groups, e-mail and Internet information, and a "One on One" service that connects newly diagnosed individuals with long-term survivors.
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United Ostomy Association, Inc.
800-826-0826 (6:30am - 4:30pm, PST)
http://www.uoa.org
Helps ostomy patients through mutual aid and emotional support. It provides information to patients and the public and sends volunteers to visit with new ostomy patients.
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About Herbs, Botanicals & Other Products
http://www.mskcc.org/mskcc/html/11570.cfm
Website led by an oncology-trained pharmacist that provides information about herbs and other products, including a clinical summary for each agent and details about adverse side effects, interactions, and potential benefits or problems.
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Center for Mind-Body Medicine
202-966-7338
http://www.cmbm.org
Combines modern science with ancient healing. Addresses the mental, emotional, social, physical, and spiritual sides of health and illness.
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National Center for Complementary and Alternative Medicine (NCCAM)
888-644-6226
http://www.nccam.nih.gov
Provides the latest news, research, events, and clinical trials in complementary medicine.
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American Cancer Society (ACS)
800-ACS-2345 (800-227-2345)
http://www.cancer.org
A voluntary organization that offers a variety of services to patients and their families. The ACS also supports research, provides printed materials, and conducts educational programs. Spanish language help available.
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American Institute for Cancer Research (AICR)
800-843-8114
http://www.aicr.org
Provides information about cancer prevention, particularly through diet and nutrition. They offer a toll-free nutrition hotline, pen pal support network, and funding of research grants. Spanish language publications available.
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American Society of Clinical Oncology (ASCO)
703-299-0150
http://www.asco.org
Contains more than 40,000 pages of information, including: cancer resources on the Internet, finding an oncologist, and up-to-date information about cancer policy issues.
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Anderson Network
800-345-6324
http://www.mdanderson.org/andersonnetwork
Along with providing educational forums and a quarterly newsletter, the Anderson Network offers a patient-matching program and support for caregivers.
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Asian American Health
http://www3.baylor.edu/~Charles_Kemp/asian_health.html
Provides understanding of Asian healthcare beliefs and practices, including web links to Asian health.
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Association of Cancer Online Resources
http://www.acor.org
Provides resources for cancer patients wanting to find others with similar cancers. Also has information about most kinds of cancer.
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Bloch Cancer Hotline
800-433-0464
http://www.blochcancer.org
Matches newly diagnosed cancer patients with trained, home-based volunteers who have been treated for the same type of cancer.
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Cancer Care, Inc.
800-813-HOPE (800-813-4673)
http://www.cancercare.org
A national nonprofit agency that offers free support, information, financial assistance, and practical help to people with cancer and their loved ones. Services are available in person, over the phone, and through the agency’s website.
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Cancer Control PLANET (Plan, Link, Act, Network with Evidence-based Tools)
http://cancercontrolplanet.cancer.gov
Developed as a joint effort between the National Cancer Institute and the American Cancer Society, among others, this site offers new tools for cancer control planning, implementation, and evaluation.
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Cancer Hope Network
877-HOPENET (877-467-3638)
http://www.cancerhopenetwork.org
The Cancer Hope Network provides individual support to cancer patients and their families by matching them with trained volunteers who have undergone and recovered from a similar cancer experience.
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Cancer Information and Counseling Line (CICL)
800-525-3777
http://www.amc.org
Professional counselors provide up-to-date medical information, emotional support through short-term counseling, and resource referrals to callers nationwide (8:30am - 5:00pm MST).
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Cancer Legal Resource Center
213-736-1455
http://www.wlcdr.org
Provides information on cancer-related legal issues for cancer survivors, their families, and others impacted by the disease.
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Cancer News on the Net
http://www.cancernews.com
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Cancer Research Institute
800-99-CANCER
http://www.cancerresearch.org
Supports leading-edge research aimed at developing immunological methods for the treatment, control and prevention of cancer.
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Cancer Survivor's Gathering Place
http://www.geocities.com/cancer_survivors
This website focuses on cancer survivors, providing an active bulletin board, chat rooms, links, and inspirational material.
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Cancer Treatment Centers of America
http://www.cancercenter.com
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Cancer On Line
http://www.canceronline.com
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Cancer411.org
877-226-2741
http://www.cancer411.org
Provides database on clinical trials that lists all ongoing cancer trials. Also offers news articles and other patient resources.
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CancerBACUP
http://www.cancerbacup.org.uk
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CancerSource
http://www.cancersource.com
Focuses on education, news, support, and includes detailed information on complementary and integrative therapies.
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Cancervive
800-486-2873
http://www.cancervive.org
Helps cancer survivors overcome the challenges of "life after cancer." In addition to support groups, they provide educational materials, insurance information and assistance, and advocacy.
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Carcinoid Cancer Foundation, Inc.
888-722-3132
http://www.carcinoid.org
Provides education, support groups, transcripts of lectures, and nutrition resources.
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Coping With Cancer Magazine
615-790-2400
http://www.copingmag.com
Magazine for people whose lives have been touched by cancer. Provides knowledge, hope, and inspiration from cancer survivors and healthcare professionals.
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Dave Dravecky’s Outreach of Hope
719-481-3528
http://www.OutreachOfHope.org
Offers comfort, encouragement and hope through the love of Jesus Christ to those suffering from cancer or amputation.
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Department of Health and Human Services
http://www.os.dhhs.gov
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Doctor's Guide to the Internet
http://www.docguide.com
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Exceptional Cancer Patients
814-337-8192
http://www.ecap-online.org
Provides emotional support and education for people living with cancer and other life-threatening illnesses.
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Fertile Hope
888-994-4673
http://www.fertilehope.org
A nonprofit organization dedicated to helping cancer patients with fertility issues.
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FindCancerExperts
http://www.findcancerexperts.com
A referral source for those who want a second opinion on a biopsy diagnosis of cancer.
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Food and Drug Administration
http://www.fda.gov
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Gilda’s Club, Inc.
917-305-1200
http://www.gildasclub.org
Provides social and emotional support to cancer patients, their families, and friends. Lectures, workshops, networking groups, special events, and a children’s program are available. Open in 14 cities.
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Guide to Internet Resources for Cancer
http://www.ncl.ac.uk/~nchwww/guides/clinks1.html
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Healthfinder
http://www.healthfinder.gov
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HealthyWorld Online
http://www.health.net
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InfoNet
http://infonet.welch.jhu.edu/advocacy.html
Provides an extensive list of toll-free numbers for more than 100 disease-related organizations.
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Intelihealth-Johns Hopkins Health Information
http://www.intelihealth.com
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International Association of Laryngectomees (IAL)
209-472-0516
An Association of over 230 laryngectomee clubs. Clubs provide pre and post-operation visits to laryngeal cancer patients and continuing support and education for laryngectomees and families.
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International Cancer Alliance (ICA)
800-ICARE-61 (800-422-7361)
http://www.icare.org
Provides a free Cancer Therapy Review, which includes information on a specific type of cancer (description and staging, treatment, diagnostic tests and clinical trials). Cancer Breakthroughs report is sent quarterly.
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Joint Commission on Accreditation Health Care Organization
http://www.jcaho.org
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Kids Konnected
800-899-2866
http://www.kidskonnected.org
Offers a variety of support services free to children, ages 3-18, who have a parent with cancer or who have lost a parent to cancer.
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Locks of Love
http://www.locksoflove.org
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Mary-Helen Mautner Project for Lesbians with Cancer (MHMPLC)
202-332-5536
http://www.mautnerproject.org
Provides transportation to and from treatment, legal assistance, support groups, bereavement counseling, education, and a smoking cessation program.
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Medicinenet.com Smart Medicine
http://www.medicinenet.com
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Medscape
http://www.medscape.com
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National Cancer Institute
800-4-CANCER (800-422-6237)
http://www.cancer.gov
An excellent and comprehensive site for people wanting to know more about cancer, including cancer prevention, definitions, clinical trial information, recipes, links to cancer centers, and a whole lot more.
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National Coalition for Cancer Survivorship (NCCS)
877-NCCS-YES (877-622-7937)
http://www.cansearch.org
NCCS is a network of groups and individuals that offer support to cancer survivors and their loved ones. It provides information and resources on cancer support, advocacy, and quality-of-life issues. A section of the NCCS website and a limited selection of publications are available in Spanish.
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National Lymphadema Network, Inc.
510-208-3200
http://www.lymphnet.org
Publishes a quarterly newsletter, provides referrals, and offers educational materials.
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Oncolink-University of Pennsylvania Cancer Center
http://www.oncolink.com
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OncologyChannel
http://www.oncologychannel.com
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People Living With Cancer
703-797-1914
http://www.plwc.org
Links all ASCO information and materials in addition to giving other communication access to people with all kinds of cancer.
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Planet Cancer
http://www.planetcancer.org
Website for young adults with cancer. A place to share insights, explore fears, or laugh with others.
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PubMed
http://www.ncbi.nlm.nih.gov/PubMed
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R. A. Bloch Cancer Foundation, Inc.
800-433-0464
http://www.blochcancer.org
The foundation matches newly diagnosed cancer patients with trained,home-based volunteers who have been treated for the same type of cancer. Informational materials, and a list of institutions that offer second opinions also available.
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Steve Dunn's Cancer Guide
http://www.cancerguide.com
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The Chemotherapy Foundation
212-213-9292
Supports Laboratory and clinical research for the control, cure and prevention of cancer through innovative medical therapies Conducts professional symposia to enable oncologists to incorporate advances into the care of patients distributes free literature.
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The Oley Foundation
800-776-OLEY
http://ww.oley.org
Provides free information and psychosocial support to patients fed by tubes or IV at home who cannot be sustained by normal eating because part of their gastrointestinal tract is damaged or removed.
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The Wellness Community
888-793-WELL (888-793-9355)
http://www.wellness-community.org
Provides free psychological and emotional support to cancer patients and their families. They offer support groups on stress reduction and cancer education workshops, nutrition guidance, exercise sessions, and social events.
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US Dept of Health and Human Services
http://www.hrsa.gov
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Vital Options and "The Group Room" Cancer Radio Talk Show
800-GRP-ROOM (800-477-7666)
http://www.vitaloptions.org
Sponsors a weekly syndicated call-in cancer radio talk show called "The Group Room." Listeners can participate in the show during its broadcast every Sunday from 4 p.m.- 6 p.m., EST. A live web simulcast available on the website.
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WebMd
http://www.webmd.com
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